Patientenschulung und digitale Tools

Auyezkhankyzy, D., Khojakulova, U., Yessirkepov, M., Qumar, A. B., Zimba, O., Kocyigit, B. F. & Akaltun, M. S. (2024). Nurses’ roles, interventions, and implications for management of rheumatic diseases. Rheumatology International, 44(6), 975–983. https://doi.org/10.1007/s00296-024-05603-7

Beauvais, C., Pereira, B., Pham, T., Sordet, C., Claudepierre, P., Fayet, F., Wendling, D., Costantino, F., Carton, L., Grange, L., Soubrier, M., Legoupil, N., Perdriger, A., Tavares, I., Dernis, E., Gossec, L. & Rodère, M. (2022). Development and Validation of a Self-Administered Questionnaire Measuring Essential Knowledge in Patients With Axial Spondyloarthritis. The Journal Of Rheumatology, 50(1), 56–65. https://doi.org/10.3899/jrheum.211314

Blum, N. S., Esbensen, B. A., Østergaard, M., Bremander, A., Hendricks, O., Lindgren, L. H., Andersen, L., Jensen, K. V. & Primdahl, J. (2024). Patients’ experience of a novel interdisciplinary nurse-led self-management intervention (INSELMA)—a qualitative evaluation. BMC Rheumatology, 8(1). https://doi.org/10.1186/s41927-024-00379-6

Boonen, A., Webers, C., Butink, M., Barten, B., Betteridge, N., Black, D. C., Bremander, A., Boteva, B., Brzezińska, O., Chauhan, L., Copsey, S., Guimarães, V., Gignac, M., Glaysher, J., Green, F., Hoving, J. L., Marques, M. L., Smucrova, H., Stamm, T. A., . . . Verstappen, S. M. M. (2022). 2021 EULAR points to consider to support people with rheumatic and musculoskeletal diseases to participate in healthy and sustainable paid work. Annals Of The Rheumatic Diseases, 82(1), 57–64. https://doi.org/10.1136/ard-2022-222678

Braun, J., Albrecht, K., Callhoff, J., Haase, I., Krause, A., Lakomek, H., Meyer-Olson, D., Schmale-Grede, R., Wagner, U., Zeidler, J., Zinke, S., Voormann, A. & Specker, C. (2024). Rheumatologische Versorgung in Deutschland. Zeitschrift für Rheumatologie, 83(S2), 249–284. https://doi.org/10.1007/s00393-024-01539-2

Brodin, N., Conradsson, D. M., Swinnen, T. W., Esbensen, B. A., Kennedy, N., Hammer, N. M., McKenna, S., Henriksson, P. & Nordgren, B. (2023). Self-report and device-based physical activity measures and adherence to physical activity recommendations: a cross-sectional survey among people with inflammatory joint disease in four European countries. BMJ Open, 13(2), e064278. https://doi.org/10.1136/bmjopen-2022-064278

Brolin, S., Welin, E., Lövström, B., Bruchfeld, A., Gunnarsson, I. & Pettersson, S. (2022). Exploring the educational needs of patients with systemic vasculitis using the educational needs assessment tool. Rheumatology Advances in Practice, 6(2). https://doi.org/10.1093/rap/rkac062

Cipolletta, E., Fiorentino, M. C., Vreju, F. A., Moccia, S. & Filippucci, E. (2024). Editorial: Artificial intelligence in rheumatology and musculoskeletal diseases. Frontiers in Medicine, 11. https://doi.org/10.3389/fmed.2024.1402871

Davergne, T., Kedra, J. & Gossec, L. (2021). Wearable activity trackers and artificial intelligence in the management of rheumatic diseases. Zeitschrift für Rheumatologie, 80(10), 928–935. https://doi.org/10.1007/s00393-021-01100-5

Duhn, P., Wæhrens, E., Pedersen, M., Nielsen, S., Locht, H., Bliddal, H., Christensen, R. & Amris, K. (2023). Effectiveness of patient education as a stand-alone intervention for patients with chronic widespread pain and fibromyalgia: a systematic review and meta-analysis of randomized trials. Scandinavian Journal Of Rheumatology, 52(6), 654–663. https://doi.org/10.1080/03009742.2023.2192450

Gavin, J. P., Rossiter, L., Adams, J., Fenerty, V., Leese, J., Hammond, A., Davidson, E. & Backman, C. (2023). P104 The role of occupational therapy for the self-management of rheumatoid arthritis: a mixed methods systematic review. Lara D. Veeken, 62(Supplement_2). https://doi.org/10.1093/rheumatology/kead104.145

Gerlich, C., Andreica, I., Küffner, R., Krause, D., Lakomek, H. J., Reusch, A. & Braun, J. (2020). Evaluation einer Basisschulung für Patienten mit rheumatoider Arthritis. Zeitschrift für Rheumatologie, 79(8), 737–748. https://doi.org/10.1007/s00393-020-00769-4

Gupta, L., Najm, A., Kabir, K. & De Cock, D. (2023). Digital health in musculoskeletal care: where are we heading? BMC Musculoskeletal Disorders, 24(1). https://doi.org/10.1186/s12891-023-06309-w

Gwinnutt, J. M., Wieczorek, M., Balanescu, A., Bischoff-Ferrari, H. A., Boonen, A., Cavalli, G., De Souza, S., De Thurah, A., Dorner, T. E., Moe, R. H., Putrik, P., Rodríguez-Carrio, J., Silva-Fernández, L., Stamm, T., Walker-Bone, K., Welling, J., Zlatković-Švenda, M. I., Guillemin, F. & Verstappen, S. M. M. (2022). 2021 EULAR recommendations regarding lifestyle behaviours and work participation to prevent progression of rheumatic and musculoskeletal diseases. Annals Of The Rheumatic Diseases, 82(1), 48–56. https://doi.org/10.1136/annrheumdis-2021-222020

Hansen, C. W., Esbensen, B. A., De Thurah, A., Christensen, R., De Wit, M. & Cromhout, P. F. (2022). Outcome measures in rheumatology applied in self-management interventions targeting people with inflammatory Arthritis A systematic review of outcome domains and measurement instruments. Seminars in Arthritis And Rheumatism, 54, 151995. https://doi.org/10.1016/j.semarthrit.2022.151995

Harmsen, S., Nabuurs, J. A., De Lehnsfeld, L. F. L., Van der Meij, M. G., Broerse, J. E. W. & Pittens, C. A. C. M. (2022). Mapping the complex everyday challenges and needs of people with rheumatic disease and their surroundings using a multi‐actor approach. Musculoskeletal Care, 20(4), 873–891. https://doi.org/10.1002/msc.1639

Hermans, K., Boonen, A., Vonkeman, H. E. & Van Tubergen, A. (2023). Effectiveness and cost-effectiveness of combined asynchronous telemonitoring and patient-initiated care for spondyloarthritis: protocol for a pragmatic multicentre randomised controlled trial (TeleSpA Study). BMJ Open, 13(2), e067445. https://doi.org/10.1136/bmjopen-2022-067445

Herndon, S., Corneli, A., Dombeck, C., Swezey, T., Clowse, M. E., Rogers, J. L., Criscione-Schreiber, L. G., Sadun, R. E., Doss, J., Eudy, A. M., Bosworth, H. B. & Sun, K. (2024). A qualitative study of facilitators of medication adherence in systemic lupus erythematosus: Perspectives from rheumatology providers/staff and patients. Lupus, 33(2), 137–144. https://doi.org/10.1177/09612033231225843

Hirsch, J. K., Toussaint, L., Offenbächer, M., Kohls, N., Hanshans, C., Vallejo, M., Rivera, J., Sirois, F., Untner, J., Hölzl, B., Gaisberger, M. & Ndosi, M. (2020). Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria. Musculoskeletal Care, 18(3), 391–396. https://doi.org/10.1002/msc.1474

Holten, K., Sundlisæter, N. P., Sexton, J., Kjørholt, K. E., Nordberg, L. B., Moholt, E., Uhlig, T., Van der Heijde, D., Solomon, D. H., Haavardsholm, E. A., Lillegraven, S. & Aga, A. (2024). Agreement between patient-reported flares and clinically significant flare status in patients with rheumatoid arthritis in sustained remission: data from the ARCTIC REWIND trials. RMD Open, 10(3), e004444. https://doi.org/10.1136/rmdopen-2024-004444

Jones, B., Bennett, S., Larsson, I., Zangi, H., Boström, C., Van der Elst, K., Fayet, F., Fusama, M., Del Carmen Herrero Manso, M., Hoeper, J. R., Kukkurainen, M. L., Kwok, S. K., Frãzao-Mateus, E., Minnock, P., Nava, T., Nikolic, M. P., Primdahl, J., Rawat, R., Schoenfelder, M., . . . Ndosi, M. (2022a). Disseminating and assessing implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with patients’ perspectives. RMD Open, 8(1), e002256. https://doi.org/10.1136/rmdopen-2022-002256

Jones, B., Bennett, S., Larsson, I., Zangi, H., Boström, C., Van der Elst, K., Fayet, F., Fusama, M., Del Carmen Herrero Manso, M., Hoeper, J. R., Kukkurainen, M. L., Kwok, S. K., Frãzao-Mateus, E., Minnock, P., Nava, T., Nikolic, M. P., Primdahl, J., Rawat, R., Schoenfelder, M., . . . Ndosi, M. (2022b). Disseminating and assessing implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with patients’ perspectives. RMD Open, 8(1), e002256. https://doi.org/10.1136/rmdopen-2022-002256

Karabukayeva, A., Hearld, L. R., Choi, S. & Singh, J. A. (2024). Patient Perspectives on a Decision Aid for Systemic Lupus Erythematosus: Insights and Future Considerations. The Journal Of Rheumatology, 51(8), 798–803. https://doi.org/10.3899/jrheum.2023-1178

Kataria, S. & Ravindran, V. (2018). Digital health: a new dimension in rheumatology patient care. Rheumatology International, 38(11), 1949–1957. https://doi.org/10.1007/s00296-018-4037-x

Knitza, J., Tascilar, K., Fuchs, F., Mohn, J., Kuhn, S., Bohr, D., Muehlensiepen, F., Bergmann, C., Labinsky, H., Morf, H., Araujo, E., Englbrecht, M., Vorbrüggen, W., Von der Decken, C., Kleinert, S., Ramming, A., Distler, J. H. W., Bartz-Bazzanella, P., Vuillerme, N., . . . Hueber, A. (2024). Diagnostic Accuracy of a Mobile AI-Based Symptom Checker and a Web-Based Self-Referral Tool in Rheumatology: Multicenter Randomized Controlled Trial. Journal Of Medical Internet Research, 26, e55542. https://doi.org/10.2196/55542

Knudsen, L. R., Lomborg, K., Ndosi, M., Hauge, E. & De Thurah, A. (2021). The effectiveness of e-learning in patient education delivered to patients with rheumatoid arthritis: The WebRA study—protocol for a pragmatic randomised controlled trial. BMC Rheumatology, 5(1). https://doi.org/10.1186/s41927-021-00226-y

Knudsen, L. R., Ndosi, M., Hauge, E., Lomborg, K., Dreyer, L., Aaboe, S., Kjær, M. B., Sørensen, L., Volsmann, L., Christensen, H. M. & De Thurah, A. (2024). Effectiveness of a novel digital patient education programme to support self-management of early rheumatoid arthritis: a randomized controlled trial. Lara D. Veeken, 63(9), 2547–2556. https://doi.org/10.1093/rheumatology/keae177

Looijen, A. E. M., Van Linschoten, R. C. A., Brugma, J., Hijnen, D. J., De Jong, P. H. P., Van der Kuy, P. H. M., Van Laar, J. A. M., Van der Woude, C. J. & Pasma, A. (2023). Digital Outcome Measurement to Improve Care for Patients With Immune-Mediated Inflammatory Diseases: Protocol for the IMID Registry. JMIR Research Protocols, 12, e43230. https://doi.org/10.2196/43230

Lopez-Olivo, M. A. & Suarez-Almazor, M. E. (2019). Digital Patient Education and Decision Aids. Rheumatic Disease Clinics Of North America, 45(2), 245–256. https://doi.org/10.1016/j.rdc.2019.01.001

MacBrayne, A., Curzon, P., Soyel, H., Marsh, W., Fenton, N., Pitzalis, C. & Humby, F. (2023). Attitudes to technology supported rheumatoid arthritis care: investigating patient and clinician perceived opportunities and barriers. Rheumatology Advances in Practice, 7(3). https://doi.org/10.1093/rap/rkad089

Madelaine-Bonjour, C. & Grosjean, A. (2024). Éducation thérapeutique du patient en rhumatologie. Revue Médicale Suisse, 20(865), 533–536. https://doi.org/10.53738/revmed.2024.20.865.533

Matsuura, E., Origuchi, T. & Hamasaki, M. (2021). Association of health-related quality of life with self-management and satisfaction of relationship with healthcare professionals in female patients with rheumatoid arthritis. Modern Rheumatology, 32(1), 114–120. https://doi.org/10.1080/14397595.2020.1868667

Mollard, E. & Michaud, K. (2020). Self-Management of Rheumatoid Arthritis: Mobile Applications. Current Rheumatology Reports, 23(1). https://doi.org/10.1007/s11926-020-00968-7

Muehlensiepen, F., Petit, P., Knitza, J., Welcker, M. & Vuillerme, N. (2024). Identification of Motivational Determinants for Telemedicine Use Among Patients With Rheumatoid Arthritis in Germany: Secondary Analysis of Data From a Nationwide Cross-Sectional Survey Study. Journal Of Medical Internet Research, 26, e47733. https://doi.org/10.2196/47733

Novella-Navarro, M., Iniesta-Chamorro, J. M., Benavent, D., Bachiller-Corral, J., Calvo-Aranda, E., Borrell, H., Berbel-Arcobé, L., Navarro-Compan, V., Michelena, X., Lojo-Oliveira, L., Arroyo-Palomo, J., Diaz-Almiron, M., García, V. G., Monjo-Henry, I., González, C. M. G., Gomez, E. J., Balsa, A. & Plasencia-Rodríguez, C. (2024). Toward Telemonitoring in Immune-Mediated Inflammatory Diseases: Protocol for a Mixed Attention Model Study. JMIR Research Protocols, 13, e55829. https://doi.org/10.2196/55829

Nowell, W. B., Gavigan, K., Garza, K., O’Beirne, R., Safford, M., George, M., Ogdie, A., Walsh, J. A., Danila, M. I., Venkatachalam, S., Stradford, L., Rivera, E. & Curtis, J. R. (2024). Which Educational Topics and Smartphone App Functions Are Prioritized by US Patients With Rheumatic and Musculoskeletal Diseases? A Mixed-Methods Study. The Journal Of Rheumatology, 51(9), 904–912. https://doi.org/10.3899/jrheum.2023-1021

Parodis, I., Girard-Guyonvarc’h, C., Arnaud, L., Distler, O., Domján, A., Van den Ende, C. H. M., Fligelstone, K., Kocher, A., Larosa, M., Lau, M., Mitropoulos, A., Ndosi, M., Poole, J. L., Redmond, A., Ritschl, V., Alexanderson, H., Sjöberg, Y., Von Perner, G., Uhlig, T., . . . Boström, C. (2023). EULAR recommendations for the non-pharmacological management of systemic lupus erythematosus and systemic sclerosis. Annals Of The Rheumatic Diseases, 83(6), 720–729. https://doi.org/10.1136/ard-2023-224416

Primdahl, J., Bremander, A., Hendricks, O., Østergaard, M., Latocha, K. M., Andersen, L., Jensen, K. V. & Esbensen, B. A. (2024). Development of a complex Interdisciplinary Nurse-coordinated SELf-MAnagement (INSELMA) intervention for patients with inflammatory arthritis. BMC Health Services Research, 24(1). https://doi.org/10.1186/s12913-023-10463-1

Renskers, L., Dartel, S. A. R., Huis, A. M. & Van Riel, P. L. (2020). Patients’ experiences regarding self-monitoring of the disease course: an observational pilot study in patients with inflammatory rheumatic diseases at a rheumatology outpatient clinic in The Netherlands. BMJ Open, 10(8), e033321. https://doi.org/10.1136/bmjopen-2019-033321

Reusch, A., Braun, J., Lakomek, H., Lakomek, M., Lind-Albrecht, G., Jäniche, H., Cattelaens, K., Hammel, L., Demtröder, F., Ehlebracht-König, I., Polnau, U., Specker, C., Gerlich, C. & Küffner, R. (2019). Flexible Programme und Fortbildungen für die rheumatologische Patientenschulung. Zeitschrift für Rheumatologie, 79(1), 74–77. https://doi.org/10.1007/s00393-019-00726-w

Riches, P. L., Alexander, D., Hauser, B., Kuske, B. & Krause, A. (2022). Evaluation of supported self-management in gout (GoutSMART): a randomised controlled feasibility trial. The Lancet Rheumatology, 4(5), e320–e328. https://doi.org/10.1016/s2665-9913(22)00062-5

Rodère, M., Pereira, B., Soubrier, M., Fayet, F., Piperno, M., Pallot-Prades, B., Pouplin, S., Baudens, G., Cohen, J., Coquerelle, P., Grange, L., Sordet, C., Tropé, S., Gossec, L. & Beauvais, C. (2022). Development and validation of a self-administered questionnaire measuring essential knowledge in patients with rheumatoid arthritis. Rheumatology International, 42(10), 1785–1795. https://doi.org/10.1007/s00296-022-05090-8

Rose-Davis, B., Van Woensel, W., Stringer, E., Abidi, S. & Abidi, S. S. R. (2019). Using an Artificial Intelligence-Based Argument Theory to Generate Automated Patient Education Dialogues for Families of Children with Juvenile Idiopathic Arthritis. Studies in Health Technology And Informatics. https://doi.org/10.3233/shti190444

Sánchez-Laulhé, P. R., Luque-Romero, L. G., Barrero-García, F. J., Biscarri-Carbonero, Á., Blanquero, J., Suero-Pineda, A. & Heredia-Rizo, A. M. (2022). An Exercise and Educational and Self-management Program Delivered With a Smartphone App (CareHand) in Adults With Rheumatoid Arthritis of the Hands: Randomized Controlled Trial. JMIR Mhealth And Uhealth, 10(4), e35462. https://doi.org/10.2196/35462

Santos, E. J. F., Farisogullari, B., Dures, E., Geenen, R. & Machado, P. M. (2023). Efficacy of non-pharmacological interventions: a systematic review informing the 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases. RMD Open, 9(3), e003350. https://doi.org/10.1136/rmdopen-2023-003350

Schwarze, M., Fieguth, V., Schuch, F., Sandner, P., Edelmann, E., Händel, A., Kettler, M., Hanke, A., Kück, M., Stein, L., Stille, C., Fellner, M., De Angelis, V., Touissant, S. & Specker, C. (2020). Krankheitsbezogener Wissenserwerb durch strukturierte Patienteninformation bei Rheumatoider Arthritis (StruPI-RA). Zeitschrift für Rheumatologie, 80(4), 364–372. https://doi.org/10.1007/s00393-020-00871-7

Solomon, D. H. & Rudin, R. S. (2020). Digital health technologies: opportunities and challenges in rheumatology. Nature Reviews Rheumatology, 16(9), 525–535. https://doi.org/10.1038/s41584-020-0461-x

Tegner, H., Rolving, N., Henriksen, M., Bech-Azeddine, R., Lundberg, M. & Esbensen, B. A. (2024). The effect of graded activity and pain education after lumbar spinal fusion on sedentary behavior 3 and 12 months post-surgery: a randomized controlled trial. Archives Of Physical Medicine And Rehabilitation, 105(8), 1480–1489. https://doi.org/10.1016/j.apmr.2024.04.005

Thomassen, E. E. K., Berg, I. J., Kristianslund, E. K., Tveter, A. T., Bakland, G., Gossec, L., Hakim, S., Macfarlane, G. J., De Thurah, A. & Østerås, N. (2024). Patients with axial spondyloarthritis reported willingness to use remote care and showed high adherence to electronic patient-reported outcome measures: an 18-month observational study. Rheumatology International, 44(10), 2089–2098. https://doi.org/10.1007/s00296-024-05673-7

Van Wissen, M. A. T., Berger, M. A. M., Schoones, J. W., Gademan, M. G. J., Van den Ende, C. H. M., Vlieland, T. P. M. V. & Van Weely, S. F. E. (2022). Reporting quality of interventions using a wearable activity tracker to improve physical activity in patients with inflammatory arthritis or osteoarthritis: a systematic review. Rheumatology International, 43(5), 803–824. https://doi.org/10.1007/s00296-022-05241-x

Xiong, T. & Krusche, M. (2023). Wearables in rheumatology. Zeitschrift für Rheumatologie, 83(3), 234–241. https://doi.org/10.1007/s00393-023-01377-8

Xu, D., Zhao, J., Liu, R., Dai, Y., Sun, K., Wong, P., Ming, S. L. S., Wearn, K. L., Wang, J., Xie, S., Zeng, L., Mu, R. & Xu, C. (2024). ChatGPT4’s proficiency in addressing patients’ questions on systemic lupus erythematosus: a blinded comparative study with specialists. Lara D. Veeken, 63(9), 2450–2456. https://doi.org/10.1093/rheumatology/keae238

Ye, C., Zweck, E., Ma, Z., Smith, J. & Katz, S. (2023). Doctor Versus Artificial Intelligence: Patient and Physician Evaluation of Large Language Model Responses to Rheumatology Patient Questions in a Cross‐Sectional Study. Arthritis & Rheumatology, 76(3), 479–484. https://doi.org/10.1002/art.42737

Zavaleta-Monestel, N. E., Serrano-Arias, B., Arguedas-Chacón, S., Quirós-Romero, A., Díaz-Madriz, J. P., Villalobos-Madriz, A., Robles-Calderón, A., Bucknor-Masís, J. & Chaverri-Fernández, J. M. (2024). Effects of clinical interventions through a comprehensive medication management program: A retrospective study among outpatients in a private hospital. Exploratory Research in Clinical And Social Pharmacy, 14, 100440. doi.org/10.1016/j.rcsop.2024.100440